Have You Taught Your Children About FASD?

It truly takes a whole village to raise a child! We must ALL work together to help the next generation! I remember once seeing a young girl in a restaurant and she had started to take a drink of wine. I ran up to her and stopped that drink. She said it was the first ‘drink’ she had since she found out she was pregnant. She then went on to say it was her Birthday and she was celebrating. I am always surprised by the lack of knowledge of FASD, but went on to explain even 1 drink can make a life-long permanent change in the brain of a baby, depending on what part of the brain is being ‘developed’ at the time of ingestion. It is truly our responsibility to help others become aware of how their actions will affect others!

“Is it safe to drink a little alcohol while pregnant, such as an occasional glass of wine?

No. According to the CDC and the U.S. Surgeon General, “There is no known safe amount of alcohol to drink while pregnant. There is also no safe time during pregnancy to drink and no safe kind of alcohol.”  According to the American Academy of Pediatrics: “There is no safe amount of alcohol when a woman is pregnant. Evidence based research states that even drinking small amounts of alcohol while pregnant can lead to miscarriage, stillbirth, prematurity, or sudden infant death syndrome.”

When you drink alcohol, so does your developing baby. Any amount of alcohol, even in one glass of wine, passes through the placenta from the mother to the growing baby.  Developing babies lack the ability to process, or metabolize, alcohol through the liver or other organs.  They absorb all of the alcohol and have the same blood alcohol concentration as the mother.  It makes no difference if the alcoholic drink consumed is a distilled spirit or liquor such as vodka, beer, or wine.”  http://www.nofas.org/light-drinking/

Thirty-two years ago we adopted a child with Fetal Alcohol Syndrome.  Her birth Mother was 14 years old.  When we found our little girl when she was 18 months old.  She had no verbal language ability and severe global Apraxia, she was diagnosed with a profound sensory neural loss in her left ear (no functional hearing) and a conductive moderate loss in her right ear. She was unable to stand on her own, was not crawling yet and had a pinched torticollis (which now has left her with hands shaking and a lack of balance).  My heart went out to her and we have spent the last 30 years advocating for her.  She has had a VERY difficult life and continues to have significant problems due to her birth parents being very young, uneducated, and intensely self-involved (as many teens are).

Our children are having babies and they MUST understand the ramifications of even 1 drink while they are pregnant. We are responsible for teaching them.  The time that is the most impressionable to the brain is in the first trimester when many girls do not even know they are pregnant.  Therefore, to a girl that is sexually active everyday must be treated as if today is the day a new life may begin…

The Effects of Subtle FAS:

Fetal Alcohol has a spectrum from mild to severe some of the most mild may look like ADHD but the cognitive effects can be severe and lasting a life time.

  • Learning information and remembering/retaining information
  • Understanding and following auditory, visual or written directions
  • Controlling emotions, highs and lows
  • Communicating and socializing (many times inappropriate)
  • Behavioral concerns ( can be angry and volatile)
  • Daily life skills, such as feeding, brushing teeth, bathing are forgotten
  • No impulse control
  • Not able to learn from their mistakes
  • Auditory Processing problems (unable to understand directions, or listen to more than 1 thing at a time)
  • Attention Problems- Can not stay focused on the topic,
  • Specific Learning Disabilities- Math, Reading Comprehension,

The mild cases are most challenging in some ways, they do not look as if anything is wrong and the individual may even be very bright however, the more subtle brain damage can be the most devastating to an individual.  They know they should be able to learn, that they are different and that they do not have the emotional control that others their age have.

Any alcohol at any time during a pregnancy may have a life-time effect on the baby’s brain.

Do you really want to take a chance on a lifelong disability for your child?  Is that one glass of wine worth the possibilities of FAS?  It is not just YOUR life that is affected.  Your child may look ‘normal’ and have life long cognitive, emotional and psychological damage.

I want to thank our daughter for being so patient with the world…learning how to accept life based on a ‘non-handicapped person’s’ view of what the environment and conditions of the world should be like for her. You have raised us to be more understanding and more compassionate because of your willingness to wait on us to ‘come around’ to your needs. The world will learn someday!  You are a brave girl living with this condition as you put on your huge forgiving smile and continue to struggle daily to learn, live and love…and all because of the pleasure of a few drinks of alcohol for one very young, immature, uninformed girl. I want to promise you sweetie, we will educate the world…because FASD is 100% preventable and it is a horrific burden for all of those suffering with this condition to bear.

Lise’ DeLong, Ph.D., CPCRT

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Creative Ways to Teach the Basic Subjects

Creative Ways to Teach the Basic Subjects

Zombie science and math!!  Well, I can say I am not a fan of the Zombies…BUT, what a creative way to get the attention of what could be the next generation of scientists’!  The brain is such a complex organ and taking the time to share how it manifests the symptoms in a manner that our youth will comprehend is what is missing in our education system.

Books are a WONDERFUL “tool” but we have got to the point in schools that they are basically our only method of teaching (in many cases).  Most people cannot sit for 7 hours straight and stay attentive, not too many of our adults can do that!  And yet we have our children sitting for hours on end trying to stay quiet and focused day after day.  

 In the STEM program, Mayim Bialik took the way the brain learns using; emotional draw, subject matter of peak interest, graphic content, colorful visuals, an absurd subject, horrific content and created an educational platform that allows students to formulate ideas, draw conclusions, and create hypothesis’.  

It is time for our schools to give ‘guidelines’ and allow teachers to be creative as they teach these traditional subjects.  If we look at why most private schools are so successful we see smaller class size therefore, more individualized attention.  We can also see fewer restrictions on our teachers as to ‘how to teach’ instead they have some creativity in their own area of expertise.   

As an founder and administrator of a private school I understand how difficult it is to constantly be creating a program that demands alternative ways of learning.  But I was also witness to daily programs such as STEM.  Incredible teachers facilitating learning using music, dance, drama/puppetry, language, literature and the visual arts.  The more restrictions a teacher has the less ability they will have to generate interest in that subject matter.  The most successful schools have teachers that have been able to introduce their personalities, their passions and their love for learning into their program.

As we approach a new school year, as parents, let’s be active in the PTO’s/PTA’s and help our teachers with programs that will inspire creativity and ‘thinking outside of our restrictive boxes’ that we have created in our educational system.  

Happy school start and BE CREATIVE FOLKS !!!! 

Just another thought by Dr. Lise’